Costello Syndrome

A rare syndrome characterized by multiple congenital anomalies including dysmorphic craniofacial features, cardiac defects, ectodermal and musculoskeletal anomalies, failure to thrive and developmental delay, and cancer.

Parent to Parent

We provide information about Costello syndrome and support to parents and health providers around the world. Most importantly we provide a global support network.

Our Aim

To gain a better understanding of Costello syndrome and to identify the best practices in treatment for our children. Whatever you learn from this site.. “….don’t stop asking questions!” The answers may surprise you.